Wednesday, September 15, 2010

Really? You're going to F**k with me about this? More from "The Good Enough Mother"

She gets up at 4:30 to have her half hour on the treadmill in her living room. The house is still asleep, thank the good Lord (if there is such a thing). Then she has to get in the shower, get dressed and start making breakfast before her daycare kids arrive at 6AM. She took on more because they need the money. Some weeks they only have fifty bucks to feed a family of four and it just won't do at all.

In her sacred half hour, she dreams. Step by step, her shoes hit the strip of rubber on the treadmill and she breathes in a predictable rhythm. Her boy is a few months shy of eighteen and she knows she's in for a fight to get him placed in a group home. He is part of her, flailing arms, limbs that won't behave and big geen eyes fringed with thick black lashes. Seizures grip him in the night and she wakes up to make sure he hasn't bitten through his tongue. She tenderly changes the sweaty pajamas, cleans up the pee and slobber and tucks him back in. His clothes hang off a body misshapen by scoliosis and he struggles to stand up straight. When he's excited, he shakes his hands as if he might be ready to reach for the controls of his favorite video game. Sometimes, she wonders whether she wants her freedom from being a 24/7 caregiver or whether she feels she must give him up because her husband has threatened to leave her if she doesn't find placement for him the second he turns eighteen.
"Maybe I'll just take him and we'll leave. I handled him just fine before I married my husband. Seems like now I'm dealing with trying to make things okay for him and trying to take care of my son too. But I really am so tired..."

She fantasizes about leaving him on the doorstep of the government agency whose mission statement is to serve families with disabled children but whose actions fall far short.

"Here is is," she imagines saying. "You won't place him. Well fuck you. He's yours now. He's homeless cuz I got nothin' left." She says this to me while we sit on her sofa as all the babies nap to the sound of Sugarland on the radio. It's our little secret that she wants to run far, far away.

"He wet the bed three times over the last two days," she says. Her eyes fill. Then the phone rings and she picks up. It's the orthodontist's office calling about what they can't or won't do for her son who has a snaggle tooth that needs to be pulled or it will abcess.

"He is disabled, THAT'S why he's on Medicaid," she says rolling her eyes. She is used to fighting this fight day in and day out to get medical services, supportive services and other kinds of assistance for her boy. "We have really good insurance through my husband's work. But his secondary is medicaid. You don't bill them? Well then refer me to someone who will...You don't do that? Well who can...I have to call Medicaid to find a preferred provider? I already did and nobody...You're sorry? Really? Well why is this so difficult to bill the primary and then bill Medicaid for the difference? No I am not going to pay out of pocket...Can't you tell me who will just pull the goddamn tooth and bill the insurance? Yeah...okay. Fine. I will do it myself."

She hangs up and looks at me. "This is what I do eevery day every time he needs medical attention. You would think in this country that a child would not have to go without medical care. But it's always a struggle."

She dreams of days on a lake. She dreams of starting a business. She dreams of dressing up in leather and riding her Harley. "I have lots of ideas," she says. "But they die when my treadmill stops."

She has that frantic look again. "I am eating too much again," she says. "I once spent my days in the gym. I worked there and I worked out. I was so ripped. A guy with some big bodybuilding competition even offered to sponsor me and I said no. Can you believe I said no? How different would MY life have been."

I look at her and remind her that she is the most astonishing example of strength and patience I have ever witnessed. I could no more do what she does in one day than I could fly to the moon. We talk about hunger and how to feed it. Right now it's with food. So what...when her time comes, food will be the last thing she will feed that hungry soul with. But once in a while, she can feed that hunger by standing up and maybe issuing a definitive statement to her husband when he complains that the furniture is dusty or that there is a ring around the tub. That's when she rises up and puts her hands on her hips. She looks down at him while he sits on the sofa in judgment of her mothering, in judgment of how she won't have sex with him on account of her being tired all the time and how the tub needs a scrubbing. And she silently walks into the kitchen. And then the sponge flies across the room past his face followed by a plastic bottle of Soft Scrub. She breathes out and shakes that honey blond hair out of her face and moves like a panther through the living room and into her bedroom to her closet. She digs around way in the back and something rattles. It's the buckles, all ten of them. She puts on those leather pants and the matching jacket without a word. And when all ten buckles are buckled, she walks past him out to the garage where her motorcycle waits. And she mounts it like an Amazon and rides into the night.

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